A Day in A Life of Epilepsy

Epilepsy affects men, women, children, and often whole families.  After over 40+ years of epilepsy I am now very thankfully under control. 

Even though the majority of my seizures were during the night, that did not keep me from having them at any time of day.  Most of them too were the Tonic Clonic, and being out for the few minutes I was having them, oh boy was it the after effects I felt. I would not know who I was, where I was nor on what planet as I referred to it as.  This would go on for many days and with no memory and very unstable the world around me didn't much exist.

At one point my short memory span was so short that even at supper time my husband would tell me to 'eat Julie' and all he would get was a blank stare.  I had forgot what he said after he finished talking.  He would then take my fork to fill with food and gradually nudge it to my mouth.  Of course when I smelt the food I would then eat it.

This is where food is so important, yet as you can see there are some of us that just don't get it when necessary.  Our Brain, being the most important organ in our body needs food to survive each day.  This could then possibly be an answer why I was after some of my seizures.

We had 5 children (1 with epilepsy passed on 3yrs) and when a person has to rely on others for any details of the past.

-I have learned to read all I can and do research on everything new that comes out.

There is something new to learn every day as our brain is complicated to the human mind.

-I have also learned of the many side effects of the Anti Epilepsy medication and there are lots.

-Keeping a daily diary and trying to figure our Triggers that could cause a seizure is a main book on my desk.

-As you can see Nutrition is so important to me now and to all parts of our health.

-Living a healthier lifestyle - get out of your box and do something to possibly to reach a goal you have

-Last but least - Keeping a positive attitude is the best thing we can do.

This is my to do list for every day of my life.  Do I have seizures still - yes.  The odd breakthrough will come but it won't stay long.  Do I take the medications still - yes.  Not nearly as many as was at one point.  Being able to say I am under control for now is a huge bundle lifted from my shoulders.  I use to be looking over those shoulders every few seconds trying to figure if a seizure were about to strike.  This only makes matters worse.  Once I can break through and be able to say "Yes I have Epilepsy, BUT it doesn't have me!" you can smile and let go.

I do hope you will join me and feel free to tell your story.